Chronic Neuropathic Pain etc. ?
Q.I hated Neurontin. It exacerbated all my symptoms and I will never take it again. I know it has helped a lot of patients but not me....
A.I found Neurontin exacerbated all my symptoms. I hated it. The only thing that works for me are narcotics. This is one whacky disease, what works for one of us doesn't work for another. I'm glad you have found relief with the Neurontin but I never ever want to see it again. I thought morphine worked really well for me - it changed my life! But the Docs are dead against it now as some folk have discovered how to change the content of the capsule and sell it. :0( So glad it works for you - keep eating the tinned pears beats prunes....(good for the bowel!!) Barb..(on Neurontin now).... I take Neurontin and Morphine (MS Contin) for severe pain. My Neuro sent me to a Pain Clinic because he tried everything he could and didn't work. I deal with nerve pain which in my opinion only Morphine can help calm the pain. I well understand anyone dealing with pain its devastating! this has been an ongoing issue for me. With sufficient pain meds, I'm up and around, active, working, eating better, and less tired. Funny how my non-MS friends can take a Vicodin and it wipes them out...for me it's a few hours of respite on bad days and it gets me up and functioning. My HMO disagrees. MS is officially a "painless" disease. I am hoping the MS Society will come out with some official statement at some point that will allow some of the stricter HMO's (I have Kaiser) to prescribe adequate pain relief. We're actually looking into going down to Mexico for meds at this point. I spoke to a therapist about meds - she specializes in illness with chronic pain. The whole addiction question. Her questions were "Have you increased your dosage or frequency?" No. "What do you do when you take a pain reliever?" Laundry, play with my child, cook, work, and sleep restfully. Her response made sense to me....that if we are addicted to anything it's the relief from pain, and that if monitored carefully, the improvement in quality of life far outweighs the risks. Unfortunately, she can't write prescriptions
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